Hope for Trisomy 13 and 18 is a not-for-profit charitable organization based in Florida created in honor and memory of all surviving and Angel children with Trisomy 13 and 18 and related Conditions. The organization was founded and the Board of Directors is made up of families who have living and Angel Children with these Conditions. We are tax-exempt, 501(c)(3)
The mission of Hope For Trisomy 13 and 18 is to fund research for Trisomy 13 and 18 and related chromosome disorders, develop programs that educate parents of children with Trisomy about options available to their child and teach them how to advocate for their child to receive all available treatment, and to create materials, literature, workshops, seminars, and conferences to educate the medical health professionals, the parents, and the public about Trisomy 13 and 18, so they have accurate and current information and resources available to them.
We know that with treatment, some of these precious children do survive, and those who lose their battle with Trisomy still bring great joy to their families, even if they live only for a moment on earth or solely in their mother’s womb. Hope for Trisomy is focusing its efforts on three major objectives:
1. RESEARCH - Generate funding for research for Trisomy 13, Trisomy 18, and related chromosome disorders and implement a process to encourage research organizations to apply for grants to conduct research of Trisomy 13 and 18.
2. SUPPORT and SERVICES - Hope for Trisomy plans to develop several outreach and support related services geared toward helping families whose baby has received a Trisomy diagnosis. Such programs to include education opportunities for parents and medical professionals, advocacy assistance, web-resource development, and financial support.
3. PRINTED MATERIALS and EVENTS - Because of current and future research, Hope for Trisomy 13 and 18 intends to create materials, literature and workshops, seminars, and conferences to educate the medical health professionals, and parents, so they have accurate and current information about Trisomy 13 and 18 along with resources available for families. This work will also involve coordinating Hope for Trisomy 13 & 18 work with already existing Trisomy organizations, foundations and support groups so that constant and accurate information is made available.