Change Language

Our Address

Hope for Trisomy 13 & 18
P.O. Box 921
Springtown, TX 76082

Phone: (866)977-6637 

fax (866) 977-6637

Web Links

Look here for links to studies, and medical information about trisomy conditions.

 

 

Display # 
# Web Link Hits
1   Link   International Trisomy 13/18 Alliance
The ITA website includes research publications about medical interventions and outcomes for children with trisomy 13 and 18. Some articles describe examples of surviving children who benefit from treatment and surgeries, and live a happy and valued life.
916
2   Link   TRIS (Tracking Rare Incidence Syndromes)
The Tracking Rare Incidence Syndromes (TRIS) project seeks to increase awareness and knowledge for families and professionals touched by rare trisomy conditions and aims to facilitate improved decision making for optimal services and supports for aff
1669
3   Link   COPAA - Education Services Advocate for Children with Disabilites.
The Council of Parent Attorneys and Advocates, Inc. (COPAA) is an independent, nonprofit, §501(c)(3) tax-exempt organization of attorneys, advocates and parents. Our primary mission is to secure high quality educational services for children with dis
1507
4   Link   What is Informed Consent?
This video explains the ethics and requirements for informed consent for treatment that every parent should fully understand prior to accepting treatment or declining treatment.
1504
5   Link   Neonatal Management of Trisomy 18
Management of neonates with trisomy 18 is controversial, supposedly due to the prognosis and the lack of precise clinical information concerning efficacy of treatment.
1895
6   Link   Chromosome 18 Registry & Research Society
Our mission is to help individuals with chromosome 18 abnormalities overcome the obstacles they face so they might lead happy, healthy and productive lives.
1483
7   Link   Chromosome Disorder Outreach
Chromosome Disorder Outreach, Inc. is a non–profit organization, founded, supported, and run by parents just like you. Our children are affected by a wide range of chromosome disorders, including deletions, duplications, trisomies, inversions, translocations, and rings. Sometimes these disorders are so unusual that doctors tell us, "You’re the only one out there." But now using our newly introduced web application we have the capability to specifically categorize chromosomal karyotypes and finally begin to understand more about the genes involved in each rare chromosome rearrangement. We hope to eventually improve specifically tailored treatments to help affected individuals.
1088
©2006 2017 Hope For Trisomy 13 and 18, Inc